Huntington's Disease Association
Tel: 0151 331 5444 Mon-Fri 9am-5pm
Suite 24, Liverpool Science Park IC1, 131 Mount Pleasant, Liverpool, L3 5TF
Information, advice and support for individuals and families affected by HD and the professionals who support them. Local groups throughout the UK.
Tel: 0114 272 32 53
Unit 1.12 SOAR Works, 14 Knutton Road, Sheffield, S5 9NU
Advice, information and support for those suffering from Irritable Bowel Syndrome.
Tel: 01708 731251 Mon-Fri 9am-5pm
St James House, Eastern Road, Romford, Essex RM1 3NH
National charity supporting people with systemic lupus and discoid lupus and assisting those approaching diagnosis.
Tel: 0808 80 10 388 9am-8pm 365 days
Fern House, Bath Road, Stroud, Gloucestershire, GL5 3TJ
Offers information or support around the subjects of meningitis, meningococcal septicaemia and the after-effects. Services include helpline, online communities, free counselling, community and peer support and financial help.
MNDA (Motor Neurone Disease Association)
Tel: Helpline 0808 802 6262 Mon-Fri 9am-5pm (also 7pm-10.30pm for those affected by MND)
David Niven House, 10-15 Notre Dame Mews, Northampton NN1 2BG
Advice, practical and emotional support and directing to other services and agencies, for people living with MND, carers, family members, Health and Social Care Professionals and Association staff and volunteers.
Tel: Helpline 0800 783 0518 Mon-Fri 9am-5pm
Unsworth House, Hythe Quay, Colchester, Essex CO2 8JF
National charity dedicated to empowering people with multiple sclerosis to make the most of today, and live life to the full. Provides high quality, accessible and relevant information and support to anyone affected by multiple sclerosis.
Multiple Sclerosis Society
Tel: Helpline 0808 800 8000 Mon-Fri 9am-9pm
372 Edgeware Road, London NW2 6ND
Provides information and practical and emotional support for people with MS, their families, carers and healthcare professionals. Helpline, online communities and local support groups and services.
National Osteoporosis Society
Tel: Helpline 0808 800 0035 Mon, Wed Thu & Fri 9am-5pm, Tue 11am-7pm
NOS, Camerton, Bath, BA2 0PJ
Provides information, advice and support for anyone affected by osteoporosis. Live webchat available.
Tel: Helpline 0808 800 0303 Mon-Fri 9am-7pm, Sat 10am-2pm
215 Vauxhall Bridge Road, London SW1V 1EJ
Information, advice and support for everyone affected by Parkinson's through helpline, local advisers and groups, and online forums
Tel: 0845 676 0076 Mon-Thu 9.15am-4.45pm, Fri 9.15am-4.15pm
Dick Coles House, 2 Queesbridge, Northampton, NN4 7BF
Helps people whose lives are affected by psoriasis and psoriatic arthritis through research, information and raising awareness.
Tel: Support helpline 01582 798911
Langham House West, Mill Street, Luton LU1 2NA
Provides professional support to people living with Rett syndrome, through a national helpline, specialist clinics, local support groups and a dedicated parental contact network. Also provides training for those supporting people with Rett syndrome.
Tel: 01733 555988
42 Park Road, Peterborough, PE1 2UQ
Formerly the Association for Spina Bifida and Hydrocephalus (ASBAH). Community of 75,000 individuals, families, friends and professionals, sharing achievements, challenges and information on living with hydrocephalus, or spina bifida, and related issues throughout England, Wales and Northern Ireland.
Tel: Helpline 0845 303 3100 Mon, Tue, Wed & Fri 9am-5pm, Thu 9am-3.30pm
Life After Stroke Centre, Church Lane, Bromsgrove, Worcestershire B61 8RA
Support, information and guidance for people affected by stroke.
The Encephalitis Society
Tel: Helpline 01653 699599 Mon-Fri 9am-5pm
32 Castlegate, Malton, North Yorkshire YO17 7DT
Supports adults and children affected by Encephalitis, their families and carers by providing advice and information and working at a national and international level to improve services.
The Haemophilia Society
Tel: 0207 939 0780
Willcox House, 140 – 148 Borough High Street, London SE1 1LB
Provides information, support and services for everyone affected by a bleeding disorder like haemophilia and von Willebrands.